How Does it Feel?

How does it feel to be glutened? For me, first it’s an unsettling feeling, followed by a migraine. My digestive bloat and “issues” comes within an hour, or sometimes two. I always try to have probiotics, Tylenol, and Hyland’s Teething Tablets with me to delay the pain. Inflammation and “belly bloat” is inevitable, as is the brain fog and carelessness for weeks to come.
How does it feel to be told it’s all in your head? For me, it’s hurtful down to my guts and back again. It hurts in every cell in my body, every nerve ending just bursts with heat and fire. It hurts in my hair. It hurts in my toenails covered in gluten-free nail polish. I don’t expect half the world to understand, but I do expect those that I have educated, those that knew me before: when I stuttered, when I had a migraine that didn’t go away for 12 weeks, when I was in so much pain that I couldn’t walk to the bathroom, I expect those people to know that gluten-poisoning is real for me.
How does it feel to see gluten-free dishes and cooking spoons be contaminated with gluten? For me, it’s not the end of the world, but it still hurts. It hurts until I am able to purchase a new pot, pan, bakeware, blender, mixer, lid, spoon, etc. However, I still feel the pain of knowing it could all be avoided when I buy my new pot or spoon. It hurts a lot to know that I used to be careless just like this. It hurts to know that regular people actually do hurt other regular people and think nothing of it. It hurts to know that this pain can all be avoided if everyone was open to change and acceptance of other people’s differences and diseases. I’m not asking the world to understand my pain, I’m just asking the world to acknowledge that it is real, even if you can’t see or feel it.